Living without Muscle Movement (Myotubular Myopathy) Published 2023-05-25 Download video MP4 360p Download video MP4 720p Recommendations 11:07 A Kid with Declining Health Because Insurance Denied His Meds 10:50 A Kid with One of the World's Rarest Disorders (1 of 4 Known Cases) 17:00 A Child Who Can't Speak or Blink (And How He Communicates Anyway) 14:48 A Kid with a Deadly and Invisible Disease (Barth Syndrome) 02:53 Best friends with autism share 'magical' bond through music and nonverbal cues 28:25 The Man in an Iron Lung (A Polio Survivor's Story) 27:03 A Nonspeaking Kid Who Communicates Through Music 32:14 Two Autistic Teen Orphans (A Story of Resilience and Survival) 11:43 A Kid with a Gene Mutation (Fragile X) 16:53 Living with a Facial Difference and Hoping People Say "Hi" 18:16 Living with a Rare Childhood Stroke Disease (Moyamoya) 01:01 Faces of Turner Syndrome 20:11 An Autistic Man who will Always Need Support and his Loving Parents 23:21 A Boy with Locked-in Syndrome and a Family That Won't Quit 03:47 What does Angelman Syndrome look like? 25:30 An Intellectually Disabled Senior with Dementia (And Her Caregiving Brother) 09:56 Huntington's disease as a family - Walters family 16:49 A Disabled Artist who Communicates by Painting 20:16 Conjoined Twins Who Were Separated (A Miraculous Story) 15:34 Grayson’s Syndrome (The Only Known Case in Human History) Similar videos 13:42 Living with a Terminal Illness and Still Happy (Muscle Myopathy) 29:31 21 de julio de 2023 27:15 25 July 2023 19:16 Living with End-Stage Heart and Lung Disease (Finding Joy with a Short Life) 17:37 An Autistic Wife with Down Syndrome and Her Husband 10:03 2019 SciFam: A Day In The Life with Nemaline Myopathy 28:14 Lincoln's shot: The journey 04:34 Living with Nemaline Myopathy 01:41 Will Ward's Rare Disease Story 55:54 "Congenital Myopathies" by Amanda Rogers, MD 19:05 Growing up with Myotubular Myopathy 03:00 Gene therapy defeats muscle disease in tests 02:46 From RYR-1 Diagnosis To Heading Home: Baby Charlie's Journey With The Rare Condition 1:12:16 Living With CMD 00:20 2012-03-09 Paley puts on glasses 00:46 On the Court with Natalie; Soccer Superstar Talks Living With Bethlem Myopathy 13:04 A Kid with a Backwards Heart (And a Mom who Fought for His Life) More results