From RYR-1 Diagnosis To Heading Home: Baby Charlie's Journey With The Rare Condition Published 2023-10-25 Download video MP4 360p Download video MP4 720p Recommendations 03:14 Heading Home: Previously Conjoined McDonald Twins Discharged 12:05 Assistive Technology - Unlocking the Future 06:42 RYR-1 Questions 03:07 Jonathan's Journey as a Medically Complex Child 08:16 Hemolytic Uremic Syndrome 01:16 Learn to Spot the Warning Signs of SMA – Floppy Baby (Video 5) 11:30 Going Home 11:39 What's up with the narcissist's eyebrows? 09:02 Preparing for Your Child's Surgery 03:46 Ada's Adventure: Surviving Twin Preemie Weaned From Ventilator, Goes Home for First Time 08:21 Amarion’s Story – Marshfield Children’s Hospital 29:08 Introduction to RYR-1 Myopathy 04:34 Kirk's Connection: Interpersonal Relationships Help Infant Recover From Near Drowning Brain Injury 06:09 Getting Ready for Surgery 13:42 Living with a Terminal Illness and Still Happy (Muscle Myopathy) 13:33 A Journey of Hope 06:00 Milana's Story-Thriving With Pierre Robin Sequence 12:15 Cute Baby Moments: Too Much Cuteness 06:08 Neurology - Topic 17 Huntingtons disease - patient 03:28 Your Child's Endoscopy: What to Expect Similar videos 25:05 Introduction to RYR-1-Related Diseases 1:01:25 Virtual Lecture and Q&A Session: The Role of Calcium in RYR-1-Related Diseases by Dr. Robert Dirksen 23:31 Coronavirus (COVID-19) & RYR-1-Related Diseases: Webinar with Dr. Oscar "Hank" Mayer 57:53 Malignant Hyperthermia 11:34 RyRy has been acting strange lately.. 12:34 Tydus BLAMED His SISTER For This! *BIG TROUBLE* 24:36 Inter-abled couple finds love the new fashioned way – the internet 1:38:05 MRSA World Awareness 2023 Recording 55:51 Pediatric Neuromuscular Disorders Red Flags & Testing for Primary Care 1:11:14 Floppy Infant - Dr Hartley - 1Jul2020 More results