Learn About the Rare Disease Community: Meet Sarita Edwards Published 2024-02-15 Download video MP4 360p Download video MP4 720p Recommendations 05:52 Learn About the Rare Disease Community: Meet Leigh-Ana Rossitto 09:20 Learn About the Rare Disease Community: Meet Dr. Dr. Harsha Rajasimha 01:45 Amgen’s Research & Development (R&D) Vision 03:09 Amgen featured in Nasdaq's 2021 Innovation Realized Series 03:07 Learn About the Rare Disease Community: Meet Luisa Leal 01:26 Theresa Shares Day in the life living with Severe Asthma 1:03:39 #RAREis One Webinar 03:18 Learn About the Rare Disease Community: Meet Mary McGowan 01:18 Get a closer look at Amgen Thousand Oaks 01:52 Moving at the Speed of Trust 04:35 Learn About the Rare Disease Community: Meet Souad Mazari Similar videos 1:32:20 Rare Disease Government Advocating 101 1:01:45 Connecting Biotech and the Social Determinants of Health 1:18:46 2023 Rare Disease Week - Welcome and Legislative Outlook 1:14:27 Rare Disease Week 2023: Deep Policy Dive Training Webinar 1:00:08 Exploring the Unique Challenges of Navigating Rare Diseases Within the Black Community 48:08 Developing Impactful and Relevant Communication and Education Tools for Your Rare Disease Community 26:13 Share Your Story with Policymakers Training: Rare Disease Week 2022 1:05:49 Rare Across America 2022: General Training Webinar 37:10 Ep 69. Self Care - The Importance of Prioritizing Yourself #selfcare #mentalhealth 44:33 Rare Life & Patient Support: Addressing the Needs of Underserved Adult & Sr Patients in Rare Disease 1:22:52 RDDS Fireside Chat: What Can We Do Together? 31:16 COVID Conversation - Parent Discussion 50:39 All A-Board: How to Identify and Recruit Board Members for Your Rare Nonprofit 1:00:15 Effecting Change: Diversity & Cultural Competence in Research 40:34 2022 Rare Disease Week - Welcome and 2022 Legislative Asks 59:18 Understanding Parent Leadership: What Is Parent Leadership and Why Is It Important? #education 8:03:07 Rare Disease Week on Capitol Hill 2023: Legislative Conference 1:00:18 Different Paths: Journeys to Becoming a Family Leader in the Genetics System 55:06 Normalizing Mental Health: Shifting the Narrative from Stigma to Stability More results