Rare Disease Week on Capitol Hill 2023: Legislative Conference Published 2023-03-01 Download video MP4 360p Recommendations 3:32:50 “Examining Proposals that Provide Access to Care for Patients & Support Research for Rare Diseases” 59:03 SHOUT ECHO | April 18 | How to Meaningfully Engage Trainees in Caring for Patients with SUD 59:02 The Primary Care Revolution 12:57 ENGLISH SPEECH | SATYA NADELLA: Importance of Education (English Subtitles) 1:01:04 Patients Describe Lupus Symptoms and Daily Impact 1:09:40 OB - PART 1 1:29:59 Best classical music. Music for the soul: Beethoven, Mozart, Schubert, Chopin, Bach ... 🎶🎶 1:12:38 FRENCH SERIES: A Conversation with Chimamanda Ngozi Adichie 54:02 S&S ECHO | April 25 | Don’t Overthink it: Aligning Addiction Care with Community Needs 55:13 Andrew Yang at Georgetown University (Full Q&A) 1:02:14 2024 First Person with Holocaust Survivor Theodora Klayman 45:16 Recognizing and Treating Problematic Fear & Anxiety in Children | John Piacentini, PhD | UCLAMDChat 1:01:59 E175 - "CAT"-ASTROPHIC Diagnosis with Addison's Disease 51:55 Jane Fraser, Chief Executive Officer of Citi 54:14 Patti Smith Discusses "Just Kids" - National Portrait Gallery 1:12:07 Community Attitudes On Using Health Data in Research in Canada and Australia 19:15 The public speaking lesson you never had | DK . | TEDxNelson 17:00 Maryn McKenna: What do we do when antibiotics don’t work any more? 18:25 The 7 secrets of the greatest speakers in history | Richard Greene | TEDxOrangeCoast 21:24 Next steps in health & medicine -- where can technology take us? | Daniel Kraft | TEDxBerlin Similar videos 1:18:46 2023 Rare Disease Week - Welcome and Legislative Outlook 1:14:27 Rare Disease Week 2023: Deep Policy Dive Training Webinar 00:31 Join us at virtual Rare Disease Week on Capitol Hill 2021 01:37 Rare Disease Week 2023 | Meetings with Ohio Legislators Summary 51:46 2023 Rare Disease Week – Policy Deep Dive: The BENEFIT Act 17:47 2023 Rare Disease Week – Preparing for Successful Meetings 53:36 Rare Disease Congressional Caucus Briefing - Rare Disease Week on Capitol Hill 42:46 2023 Rare Disease Week - Deep Dive Policy Ask #2: Appropiations for Critical Rare Disease Programs 54:43 2023 Rare Disease Week - Documentary Screening Panel Discussion 45:36 2023 Rare Disease Week - Deep Dive Policy Ask 1: FDA Task Force on Rare Disease Activities 7:32:56 FDA Rare Disease Day 2023: “Intersections with Rare Diseases – A patient focused event” 1:02:06 2023 Rare Disease Week – Achieving Equitable Access to Utilization of Genetic Testing 45:38 RARE Advocacy Summit 2023: Emerging Rare Policy Issues 26:13 Share Your Story with Policymakers Training: Rare Disease Week 2022 1:10:18 Rare Across America 2023: General Training Webinar 13:48 2023 Rare Disease Company Coalition Briefing: Dorothea Lantz Speech 51:24 Global Genes LIVE! Global Rare Disease Advocacy & Cross Border Collaborations 1:17:43 UCLA CCRD Rare Disease Day 2023 1:00:52 The Goal and Success for Renewed European Rare Disease Policy More results