Genetics & The Duchenne Registry (Newly Diagnosed Program) Published 2020-09-02 Download video MP4 360p Recommendations 52:31 Webinar: Affinity Duchenne™ and Affinity Beyond™: Updates on Investigational RGX-202 from REGENXBIO 1:03:41 Webinar: Community Update on the New INSPIRE DUCHENNE Clinical Study of SGT-003 49:31 Edgewise Therapeutics: A Novel Approach Designed to Protect Muscle in Becker Muscular Dystrophy 1:01:16 Alternatives to Suspension for Commercial Tobacco Use in K 12 Settings 1:00:58 Navigating Steroid Choices: Understanding the Process, Pathways, and Policies 45:19 Duchenne & Me (Full Length Documemtary) 1:47:02 Duchenne and the Brain – World Duchenne Awareness Day 2020 1:21:29 Sauna Benefits Deep Dive and Optimal Use with Dr. Rhonda Patrick & MedCram 18:46 Approach to the Exam for Parkinson's Disease 1:02:48 The Final Episode of CHEF AJ LIVE! Q & A with NYT Bestselling Author Dr. Joel Fuhrman - Episode 2078 59:55 Webinar: Overview of Topline Results from Phase 3 EMBARK Study 43:13 Newborn Screening and DMD 1:01:30 Webinar: Community Update with ITF Therapeutics: Introducing DUVYZAT™ (givinostat) [March 2024] 18:40 Matthew Perry's Death From Ketamine Explained (Is It Safe For You?) 53:00 Webinar: Dyne Therapeutics — Advancing DYNE-251, an Investigational Medicine for DMD [Jan 2024] 24:07 Sjogren's Syndrome Affects the Brain and Spine 1:00:42 Webinar: AGAMREE® Approval with Catalyst Pharmaceuticals, Inc. [Nov 2023] 52:15 Webinar: Overview of WVE-N531 and the FORWARD-53 Clinical Trial with Wave Life Sciences [Feb 2024] 45:03 Webinar: Sarepta Therapeutics - Data update from MOMENTUM study, SRP-5051 [Mar 2024] 25:01 Advocating for Access: Overview of Medicaid DUR and P&T Meetings Similar videos 52:13 Genetics of Duchenne Muscular Dystrophy – Stanley Nelson, MD UCLA MDA Care Center Director 24:31 Research & Clinical Trials (Newly Diagnosed Program) 19:54 Establishing a Care Plan (Newly Diagnosed Program) 17:39 About PPMD: Our Story (Newly Diagnosed Program) 32:03 End Duchenne Tour 2020: Virtual Tour Stop in Atlanta - Genetics 3:08:06 PPMD 2018 Conference - Understanding The Diagnosis of Duchenne 1:45:26 Duchenne 101 (Genetics, Comprehensive Care & Clinical Trials) - PPMD 2022 Annual Conference 1:02:06 Decode Duchenne Genetic Testing Program [November 2015 Webinar] 1:33:35 Duchenne Muscular Dystrophy Genetic Diagnosis 5:54:15 PPMD 2020 Annual Conference - Friday, July 24, 2020 (Full Program) 1:22:01 PPMD 2019 Conference - Understanding Duchenne From The Start 22:24 Advocacy & Community Engagement (Newly Diagnosed Program) 1:17:53 PPMD 2018 Conference - What We Know & Don't Know About Duchenne 3:37:59 2018 PPMD Conference - Thursday, June 28th - Morning Session 51:53 Understanding Genetic Diagnosis & Novel Therapeutic Strategies for DMD 1:36:01 PPMD 2019 Conference - Addressing the Complexities of Duchenne 1:15:11 Help for those Newly Diagnosed with Limb Girdle Muscular Dystrophy 58:12 Webinar: NS Pharma Announcement of VILTEPSO™ (August 2020) 33:03 The STRIDE REGISTRY for Duchenne Muscular Dystrophy More results