Measuring the SMA Experience with the SMA Community Published 2020-01-24 Download video MP4 360p Recommendations 57:22 Spinal Muscular Atrophy 2019: Revised Upper Limb Module (RULM) 39:46 Living with Spinal Muscular Atrophy (A "Shiny and Bright" Personality) 05:11 What is a Clinical Research Study? 28:08 Using the Mental Capacity Act in the community 21:13 Autism spectrum disorder: Mayo Clinic Radio 20:20 Cooling (HYPOTHERMIC) Therapy for HIE - Part 2 -Tala Talks NICU 04:16 Life Saving Spinal Muscular Atrophy (SMA) Treatment | Sam's Story 42:21 Me and My Best Friend Anorexia 30:29 A Day in the Life of Interabled Lovers 05:35 ¿Qué es un estudio de investigación clínica? 04:27 Amelia's Story 17:13 Psychiatric Interviews for Teaching: Somatisation 01:48 Mechanism of Disease: SMA 03:10 Riley's story: One of the first babies in the South West to receive Zolgensma gene therapy treatment 03:31 Living with SMA: Nathan's Story 1:44:57 Best Practices in ASD Treatment: Applied Behavior Analysis Update 57:51 My Advice to Early Career Group Therapists: Irvin Yalom, MD, DLFAGPA 01:50 Presentation of SMA 03:06 Why Advancing Inclusive Research Matters 01:27 Living with SMA: Shane and Hannah’s Story Similar videos 00:47 Measuring the SMA Experience: Joshua’s Story 01:05 Measuring the SMA Experience: DeAnna’s Story 00:53 Measuring the SMA Experience: Marianne’s Story 01:00 Living with SMA: Nikki’s Story 01:28 Living with SMA: Kevan’s Story 00:52 Living with SMA: Khrystal and Curtis’ Story 02:58 Lessons Learned from SMA for DMD 02:18 Using real-world data in SMA management 02:08 Martyn: Helping the SMA community 45:38 Overview of SMA and Best Practices for Care 03:01 How the SMA Foundation is Expanding Research 03:13 Treating spinal muscular atrophy in adult patients 11:05 Superior Mesenteric Artery (SMA) Syndrome | Nutcracker Syndrome | Clinically-Oriented Anatomy 02:12 Living with SMA by Liz Adams - Roche 1:03:26 Lunch & Learn: Gene Therapy for SMA 04:12 SMA Patient Discusses His Experience with Risdiplam 02:57 Don't Forget the SMA Standards of Care More results