How Rare Disease Patients Empower Themselves Published 2021-02-01 Download video MP4 360p Recommendations 09:23 Educational Video on Gene Therapy 19:32 Claiming PIP For Autism - The Application Process & What It's For 09:53 Behind the Mystery: ENPP1 Deficiency 04:56 Why gene therapies are important 16:03 Autistic Experiences With Alcohol 01:45 What Does Justice Mean? | #JusticeJourney Interview with Catherine McKinnon 08:45 ATTR Amyloidosis - Behind The Mystery 03:27 Winning Access: Michael's Story 03:23 Janna Goebel, ASU sustainability professor 54:28 Facilitated_Communication_Prisoners_of_Silence.mov.flv 01:30 How to Find a Rare Disease Diagnosis 04:16 Doctor With Rare Disease Racing To Save His Own Life | Sunday TODAY 09:19 Behind the Mystery: Sickle Cell Disease 11:55 Central Clinical School Rare Disease Day 2022 special 22:25 Schizophrenia and Cognitive Challenges 02:03 Phoenix-area man with rare disease helps researchers 18:47 ECT Shock Therapy Saved My Life (my experience with electroconvulsive therapy) 49:49 "Through Our Eyes: Living with Asperger's" (FULL Documentary) 50-Minute Extended Version 02:19 Bill Mezzanotte for the European Hemophilia Consortium 2021 39:10 Suicide Attempt Survivor - Bronte Similar videos 08:42 Play Decide! and empower yourself as a rare disease patient or representative 05:18 10 Tips for Newly Diagnosed Rare Disease Patients and Families 02:31 Empowering people with rare diseases 01:56 Alexion | Identity Diagnosis 01:01 What a Pharmaceutical Executive has Learned Working with Rare Disease Patients 56:13 Health Equity and Rare Disorders 51:26 Walk In Our Shoes: The Experience of Rare Disease Patients 31:28 Living with a Rare Disease: The Importance of Well-Being - Episode 1: Coping After a Diagnosis 11:40 Solving the mystery of rare diseases with technology and crowdfunding: Jimmy Lin at TEDxMidAtlantic 15:39 We'll all be patients one day | Onno Faber | TEDxSanFrancisco 24:16 The Challenges of Living with a Rare Disorder - Professor Fransiska Malfait | English (EN) 1:53:05 Rare Disease Day 2022 57:19 Self-Advocacy and Care Coordination 10:28 EURORDIS Policy Event 2014 (2/8) Topic 1: Vision of Patients 00:25 Raise Your Hands for Rare Disease Day from UK patient organisations! 07:29 114 Rare Disease using Social Media and the role in Digital Health by Alan Thomas, 03:07 Self-Advocacy: Advice for Being a Pro-Active MPN Patient More results