Growing Up ‘Allergic to the Sun’ - Erythropoietic Protoporphyria Published 2016-01-15 Download video MP4 360p Download video MP4 720p Recommendations 06:36 The Girl Who's Allergic To Everything | Living Differently 08:03 I'm Allergic To Water - And People Ask Me If I Shower | BORN DIFFERENT 07:36 Tully Health Center Same Day Pediatric Surgery Tour 03:31 16-Year-Old Girl Wakes Up Every Day Thinking It’s June 11 09:42 This Young Man Is One Of Two People In The World Coping With A Rare, Nameless Disease | NBC News 05:15 Rowan's Story 10:20 Your Child's General Anaesthetic - Magic Milk and Squidgy Masks 12:10 Why Are So Many People Allergic To Food? 01:34 12-Year-Old Girl Sneezes 12,000 Times a Day: 'Kids Make Fun of Me' 08:24 Adalia Rose: The Girl Who Ages Too Fast | BORN DIFFERENT 06:34 St Mary's Children's Surgery - Essentia Health 04:48 What Happens During a Colonoscopy? 02:51 Children's Hospital Los Angeles looking for professional baby cuddlers 00:46 This toddler is allergic to sunlight 05:01 What to expect when you come in for surgery at Medical City Children's Hospital 08:09 Made of Glass: The Brave 6-Year-Old Fighting A Rare Brittle Bone Disease | Living Differently 07:44 A child's guide to hospital - IV Cannulation 02:57 The Berlin Heart - Avrie's Heart Transplant Story 02:24 Genetic condition makes baby girl allergic to sun 01:20 What to expect when you have an MRI Similar videos 22:22 I’M ALLERGIC TO THE SUN | living with Erythropoietic Protoporphyria (EPP) | my rare genetic disorder 04:54 Camp Sundown: A Camp for Kids Allergic to Sunlight [The Big Idea] 01:39 New treatment for EPP allows people with disease to enjoy sunlight 03:40 A Massillon boy's rare allergy to sunlight exposure 00:58 Mayo Clinic Minute: Sun allergies 07:05 "The fear of what lay ahead" - Erythropoietic Protoporphyria (EPP) 14:46 Children of the night: young kids allergic to the sun | 60 Minutes Australia 10:17 She's Allergic to LIGHT | House M.D. | MD TV 03:24 What is erythropoietic protoporphyria (EPP)? 1:26:42 Living with Erythropoietic protoporphyria (EPP) 03:13 Erythropoietic Protoporphyria 05:47 A life in the shadow - Erythropoietic Protoporphyria (EPP) 00:51 Boy with rare disease is allergic to the sun 00:51 Understanding erythropoietic protoporphyria - Reactions and prodrome 02:40 Part Three - Burning in shadows - Erythropoietic Protoporphyria (EPP) 01:14 Understanding erythropoietic protoporphyria 01:49 Woman Allergic to Her Own Sweat, Tears More results