Avynn's Story Part 2 | Life Story of a Medically Complex Baby | Cornelia De Lange Syndrome Baby Published 2022-06-23 Download video MP4 360p Recommendations 05:33 Spotlight On Cornelia de Lange Syndrome 15:44 Avynn's Story Part 1 | Life Story of a Medically Complex Baby | Cornelia De Lange Syndrome 04:52 Blayke's Story 03:02 CdLS National Conference - Orlando 2016 25:56 S2 Episode 27 - Learning about JAK inhibitors (like Rinvoq) and how they help IBD! 03:46 Natalie: Rett syndrome and facial differences 13:16 Our diagnosis journey Cornelia de Lange Syndrome 18:52 Is she severely affected? Looking at the CdLS spectrum 23:38 Infant Loss | Kingston's Story - Rare Disease 39:13 Being Deaf & Being Blind - Chatting Disability Stuff w/ Jessica Kellgren-Fozard! 13:16 Day in the life of a DOCTOR: Shadowing NICU NURSE PRACTITIONER (ft. premature babies) 06:45 Where I've Been.. | Meet Baby Ellis 15:12 Life expectancy of CdLS | Freya crawling 10:49 Day in the life of an OR nurse | Operating Room vlog 22:15 Milestones for my disabled child vs typically developing kids 06:11 Finding Out I'm Pregnant and Telling My Husband | Pregnancy after loss 21:19 || The day of my accident || Internal Decapitation Story|| Part 1 09:09 Follow up GI appointment for EOE CdLS 10:00 Finally answers | Follow up ortho appointment Similar videos 23:45 Freya’s birth story Cornelia de Lange Syndrome 03:10 Cornelia de Lange syndrome features - how to recognize craniofacial, feeding, limb abnormalities? 56:15 Remembrance Day 2022 01:13 Community helps care for Hannah living with Cornelia de Lange Syndrome (CDLS) 03:20 Parenting a medically complex child, and deciding to have another child. 20:39 CDLS The Rollercoaster Ride 01:39 Join the CdLS Registry - A message from Board President Richard Haaland, Ph.D. 02:41 Bradley's Story 15:25 Realistic bedtime Vlog! 🥴 Update from infectious disease. 1:15:17 CDLS- Planning for Soothing: Beyond "Coping Skills" - Presenter: Deborah McKernan - Ace, MS 24:13 our medical supplies for *MEDICALLY COMPLEX TRIPLETS* 03:34 VR 360 Video: Spa Toccare Swimming Pool at Borgata Atlantic City with Online Gamblers More results